I got a call and voicemail from the Gastroenterologist’s office on Monday afternoon, but true to my style, I ignored it. If something is urgent, they’ll usually say so in the voicemail. I got another call this morning, same message, and then they tried a second time after noon. I decided to answer, partially out of curiosity, and partially out of fear. It’s not often they make such an effort to reach me unless something is really wrong.
I spoke with my CNP, and he said my liver specific blood tests had come back indicative of autoimmune hepatitis. As a matter of fact, the anti-SMA antibody test was positive along with a positive ANA screening. I’ve had ANA checked at least a dozen times, and never has it been positive. It has always been assumed whatever is eating away at my guts is a sero-negative autoimmune disorder, but now it’s more than an assumption. Even though they’re relatively certain I have AIH, I still have to go in for a liver biopsy. Eh? That doesn’t sound like a good time.
I want a medical test that requires me to ride an elephant, go on bumper cars, or take a nice long vacation in Aruba. Sounds better than being told I need to be stabbed in the liver.
Here’s the good news: Treatment is a combination of steroids and Imuran, one of which I’m already taking, and both of which help with Crohn’s. The bad new is steroids. As if staying in the land of the semi-sane wasn’t already difficult enough for me.
So there you have it. Every single one of my digestive organs is somehow effected by my fabulous disease, along with my nerves and my joints. So now I’m wondering what I should be doing differently. I know diet is an issue, and on no planet should I be able to rationalize eating peanut butter cups for dinner because “they have iron and protein!”. But I do.