Recommended Reading & Resources

922bea5c98bf5a2effff9220ffffe904

This book is absolutely amazing.  As a person who often uses humor to diffuse the reality that life can be completely awful, I love what this guy has to say.  All of the information contained within is helpful for the newly diagnosed, but it’s presented in a way that isn’t intimidating and will often make you chortle.  It may seem fucked up that a person can laugh while reading literature pertaining to inflammatory bowel disease, but that’s what makes it a unique book and “a shitty good time”.

download

Living with Crohn’s & Colitis is full of basic information about inflammatory bowel disease, with a special focus on naturopathic healing.  It’s great to use as reference and to augment standard treatment protocol.  It also touches quite a bit on the correlation between IBD and IBS, which I appreciate.

Howdoctorsthink

Being a professional patient can be extremely frustrating, from the process of discovering diagnosis to managing diagnosed conditions.  At times I’ve felt it’s me against them (the doctors).  This is written to give the patient a better understanding of how the healthcare system works, and red flags to look out for when it comes to providers.  It gave me some much needed perspective.

Helpful links:

POTS (Postural Orthostatic Tachycardia Syndrome)

Dysautonomia International

Standing Up To POTS

Gastroparesis

About Gastroparesis at International Foundation for Functional Gastrointestinal Disorders

Crohn’s, Ulcerative Colitis, Inflammatory Bowel Disease

Crohn’s and Colitis Foundation of America

My Crohn’s and Colitis Team – social network for people with IBD

Crohn’s Forum – online forums and discussion of all things IBD (including ulcerative colitis)

Chronic Kidney Disease

National Kidney Foundation

Medhelp – Kidney Disease & disorders discussion

Dietary Considerations:

For IBS & IBD (and other autoimmune disorders)

Low FODMAP diet

SCD (specific carbohydrate) Diet

Paleo Diet

Autoimmune Protocol Diet (modified Paleo)

Ketogenic Diet

A few words about diet – there is no one-size-fits-all diet for any condition.  Most people have to play around with food types and macros to figure out which one is the most beneficial.  This is a tedious process that can take months or even years but the payoff is completely worth the effort.  In my experience, I do much better with a high fat, low carb, and low fiber diet.  This helps reduce the number of times I have to sprint to the bathroom, hypoglycemia, and even my POTS symptoms.  It’s interesting that Gatorade is recommended for POTS patients when it’s known that carbohydrate heavy foods exacerbate symptoms.  Sports drinks are easy to mix at home without all of the garbage and artificial coloring and the amount of sugar can be adjusted to taste.

Electrolyte Replacement/Oral Hydration Recipes

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